I do fear death. But what I actually fear is not dying. I mean, true, it will be sad. But I know that there is a better place waiting for me. Mattie Stepanek deathdiefear Change image and share on social
My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy. Mattie Stepanek calldisautonomicdisease Change image and share on social
While we are living in the present, we must celebrate life every day, knowing that we are becoming history with every work, every action, every deed. Mattie Stepanek actioncelebrateday Change image and share on social
Even though the future seems far away, it is actually beginning right now. Mattie Stepanek beginfuture Change image and share on social
Sometimes my body wakes me up and says 'Hey, you haven't had pain in a while. How about pain?' And sometimes I can't breathe, and that's hard to live with. But I still celebrate life and don't give up. Mattie Stepanek bodybreathecelebrate share on social
The doctor said, 'He can't last a week.' And I did. And they said, 'There's no way this kid's going to last a month.' And I did. And so they said, 'Two years. He's not going to make it.' Two years. 'Five years. He can't do that.' I lived to be five years. 'He's never going to hit double digits.' And here I am, a new teenager. Mattie Stepanek digitdoctordouble share on social
I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?' Mattie Stepanek diediseasegod Change image and share on social
Unity is strength... when there is teamwork and collaboration, wonderful things can be achieved. Mattie Stepanek achievecollaborationstrength Change image and share on social
You know, it's kind of hard because I really - I see kids on their Rollerblades and their bikes, and just running around, climbing trees, and I used to do that. And I loved doing that. Mattie Stepanek bikeclimbhard Change image and share on social
My life mission is to spread peace to the world. Mattie Stepanek lifemissionpeace Change image and share on social