I do fear death. But what I actually fear is not dying. I mean, true, it will be sad. But I know that there is a better place waiting for me. Mattie Stepanek deathdiefear Change image and share on social
My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy. Mattie Stepanek calldisautonomicdisease Change image and share on social
While we are living in the present, we must celebrate life every day, knowing that we are becoming history with every work, every action, every deed. Mattie Stepanek actioncelebrateday Change image and share on social
Even though the future seems far away, it is actually beginning right now. Mattie Stepanek beginfuture Change image and share on social
Poetry is a beautiful way of expressing feelings - happy, sad, angry, caring. It's also a way that we share with other people, to help them with those feelings. Mattie Stepanek angrybeautifulcare Change image and share on social
I never question God. Sometimes I say, 'Why me? Why do I have such a hard life? Why do I have this disease? Why do I have siblings who died?' But then I think and say, 'Why not me?' Mattie Stepanek diediseasegod Change image and share on social
You know, it's kind of hard because I really - I see kids on their Rollerblades and their bikes, and just running around, climbing trees, and I used to do that. And I loved doing that. Mattie Stepanek bikeclimbhard Change image and share on social
Wars should be fought with words, not bombs, not weapons. And calm words. I think that wars should be fought over a chessboard and a cup of something to drink. Mattie Stepanek bombcalmchessboard Change image and share on social
Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors. Mattie Stepanek agecampcounselor share on social
It doesn't matter how you pray. Just pray. All religions are beautiful and they all have one common belief. There's something bigger and greater than us that can give us and take from us life. It is better than the here and now. Mattie Stepanek beautifulbeliefbig share on social
