My disease is a very rare form of muscular dystrophy, called disautonomic mitochondrial myopathy. Mattie Stepanek calldisautonomicdisease Change image and share on social
Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors. Mattie Stepanek agecampcounselor share on social
The way of life is not as easy as some people think... like me. Mattie Stepanek easylifepeople Change image and share on social
God gives me hope that there is something greater than us, something better and bigger than the here and now, that can help us live. Mattie Stepanek biggodgreat Change image and share on social
I feel that God has given me a very special opportunity that I should not let go to waste. I use the gift he has given me. Mattie Stepanek feelgiftgod Change image and share on social
A heartsong doesn't have to be a song in your heart. It doesn't have to be talking about love and peace. It can just be your message. It can be your feeling. Some people might even call it a conscience, even though that's not really what it is. It's your message, what you feel like you need to do. Mattie Stepanek callconsciencefeel share on social
Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That's how you touch the world. But I have to reconsider what it's like to leave a legacy. Mattie Stepanek kidleavelegacy share on social
I think that someone is watching out for me, God, my guardian angel, I'm not sure who that is, but they really work hard. Mattie Stepanek angelgodguardian Change image and share on social
We're divorced from my father because he did some mean and scary things to us. Mattie Stepanek divorcefatherscary Change image and share on social
You know, it's kind of hard because I really - I see kids on their Rollerblades and their bikes, and just running around, climbing trees, and I used to do that. And I loved doing that. Mattie Stepanek bikeclimbhard Change image and share on social