Vincent Schiavelli

The mutated Marfan gene creates a defective version of fibrillin, a protein that provides structural support for soft tissues like blood vessels. Marfan victims often die young, in fact, after their aortas grow threadbare and rupture.

First-class delivery of children's palliative care is life-changing. When families are confronted with the shattering news that their children have a life-limiting condition, their world can fall apart.