Alice Dreger

You want a child who never makes you anything but proud? Please. Don't bother taking on parenthood if you can't handle the fact that sometimes your child's identity won't be what you would have chosen. And if you want to prevent a child from ever suffering? Well, then don't have a child. No one is born into the world never to suffer.

I actually completely suck at being a bioethicist. What I do is history of medicine and patient advocacy. Patient advocacy is actually the opposite of bioethics, because bioethicists are the people who increasingly set up and justify the systems we patient advocates have to fight.

Being a parent of a boy who wants to wear sparkles and grow his hair long - especially when you don't know where it's all going to go - it's hard stuff. I'm not being politically incorrect in acknowledging that, am I?

I spent three and a half years writing the novel 'Chang & Eng,' about the conjoined brothers for whom the term 'Siamese twins' was contrived, and when I think of these afflicted people, my only emotion is one of profound sympathy.